My Valve My Voice

A community for those impacted by heart valve disease

Whether you are newly diagnosed with heart valve disease, you care for someone with valve disease, or you want to learn more about symptoms or treatment, you can connect with others in the “My Valve My Voice” online community.

When you register as a “My Valve My Voice” community member, you not only become engaged in an online community of other people who understand your experience as a patient or a care partner, you also gain access to helpful information in group forums, videos, survivor stories, and more.

Together, we’re sharing our stories and experiences around topics like:

+ Navigating what it means to be newly diagnosed

+ How to understand new research and breakthroughs in treatment

+ Preparing for surgery

+ Healing and recovering from surgery

+ Training and empowering advocates and caregivers

… and much more!

Our community members give and receive valuable support, often at a difficult time. Knowing you are not alone can make a world of difference as you navigate your diagnosis, treatment, recovery, and get back to life after heart valve disease.

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Heart Valve Voice US, a nonprofit patient advocacy organization, provides patients with a united voice to improve health for people living with heart valve disease. We advocate for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice US works with people living with heart valve disease, clinicians, experts, researchers, industry partners, and other patient service and advocacy organizations.